Melbourne Patient & Family Information Forum -2025

Our next Patient & Family Information Forum will be held in Melbourne on Thursday 27th February 2025.

This in-person event will be video recorded and later hosted on our website (as we did with the 2024 Brisbane Event). The day will not be live streamed.

  • Thursday 27th February 2025

  • 10:45am – 4:00pm

  • 88 Jolimont Street, East Melbourne

 Who Will You See

Speakers on the day include

  • Professor Martin Delatycki - Omaveloxolone Early Access Program and other upcoming clinical trials for Friedreich ataxia

  • Design Therapeutics – xxxx

  • Helena Bujalka, PhD - Neuroimaging biomarkers for Friedreich ataxia: a cross-sectional analysis of TRACK-FA

  • Associate Professor Louise Corben - Why measurement of Friedreich ataxia is more important than ever

  • Biogen - Importance of Collaboration in Rare Disease

  • Liz Soragni, PhD - The Friedreich Ataxia Treatment Pipeline; progress of research and development on lead therapeutic candidates

  • Sarah Milne, PhD - The Rehabilitation for Ataxia Trial

  • Professor Adam Vogel - SpeechATAX, a treatment for speech in ataxia

  • Associate Professor Max Lim - Advancing treatments for Friedreich ataxia heart disease

To register to attend, please click here

Venue, Parking & Public Transport

Public Transport: Tram #70, Stop 7B (Rod Laver Arena/MCG Gates 1-3)

  • Stop 7B is a 5-minute walk from our venue across the MCG footbridge.

Short Term Parking: (2 & 1 hour) is available on surrounding streets.

Longer Term Parking: is available at Melbourne & Olympic Parks Eastern Car Park Olympic Blvd Melbourne.

  • Casual drive up on the day before 2pm for $7.50

  • The Eastern Car Park is a 10-minute walk from our venue across the MCG footbridges.

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Melbourne Cocktail Fundraiser

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Omaveloxolone Early Compassionate Access Program Now Open in Australia!