Melbourne Patient & Family Information Forum -2025
Our next Patient & Family Information Forum will be held in Melbourne on Thursday 27th February 2025.
This in-person event will be video recorded and later hosted on our website (as we did with the 2024 Brisbane Event). The day will not be live streamed.
Thursday 27th February 2025
10:45am – 4:00pm
88 Jolimont Street, East Melbourne
Who Will You See
Speakers on the day include
Professor Martin Delatycki - Omaveloxolone Early Access Program and other upcoming clinical trials for Friedreich ataxia
Design Therapeutics – xxxx
Helena Bujalka, PhD - Neuroimaging biomarkers for Friedreich ataxia: a cross-sectional analysis of TRACK-FA
Associate Professor Louise Corben - Why measurement of Friedreich ataxia is more important than ever
Biogen - Importance of Collaboration in Rare Disease
Liz Soragni, PhD - The Friedreich Ataxia Treatment Pipeline; progress of research and development on lead therapeutic candidates
Sarah Milne, PhD - The Rehabilitation for Ataxia Trial
Professor Adam Vogel - SpeechATAX, a treatment for speech in ataxia
Associate Professor Max Lim - Advancing treatments for Friedreich ataxia heart disease
To register to attend, please click here
Venue, Parking & Public Transport
Public Transport: Tram #70, Stop 7B (Rod Laver Arena/MCG Gates 1-3)
Stop 7B is a 5-minute walk from our venue across the MCG footbridge.
Short Term Parking: (2 & 1 hour) is available on surrounding streets.
Longer Term Parking: is available at Melbourne & Olympic Parks Eastern Car Park Olympic Blvd Melbourne.
Casual drive up on the day before 2pm for $7.50
The Eastern Car Park is a 10-minute walk from our venue across the MCG footbridges.