IMAGINE being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. No treatment or cure.

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OUR RESEARCH

We’re working hard to find treatments and a cure for Friedreich Ataxia.

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THE ATAXIAN

Private film screening.

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STAR LENDS HIS MUSCLE

Dan Hannebery becomes a fara ambassador.

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Meet nick

Nick hepper is one of those special people. Diagnosed with FA aged 21 he is now embarking on the brutal 1200 kilometres Heysen trail to fundraise for FA research.

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