IMAGINE being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. No treatment or cure.
Nick Hepper is one of those special people. Diagnosed with FA aged 21 he is now embarking on a bike ride from Adelaide to Melbourne in October 2019 to fundraise for FA research.