IMAGINE being a kid or a teenager and being told you have a degenerative muscle disease which will lead to a loss of muscle co-ordination, fatigue, vision impairment, hearing loss, slurred speech and then a serious heart condition - this is Friedreich Ataxia. 1 in every 30,000 affected. 1 in 90 are carriers. No treatment or cure.

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GET INVOLVED

There are plenty of fun ways to raise money.

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OUR RESEARCH

We’re working hard to find treatments and a cure for Friedreich Ataxia.

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THE ATAXIAN

Private film screening.

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STAR LENDS HIS MUSCLE

Dan Hannebery becomes a fara ambassador.

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Meet nick

Nick Hepper is one of those special people. Diagnosed with FA aged 21 he is now embarking on a bike ride from Adelaide to Melbourne in October 2019 to fundraise for FA research.

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